Lipedema Research Sample Sources - Available Now

Lipedema Foundation Biobank

LF has launched its own biobank, and samples and data can be made available for use by LF-funded investigators receiving awards allocated as part of the 2025 RFP cycle. At launch in April 2025, the biobank houses some sample types including cryopreserved PBMCs, Plasma, and urine. Later in 2025, we plan to begin collecting abdomen and limb (leg or arm) punch biopsies. Lipoaspirate and other remnant material may also be available. Other biological samples may be available upon request and approval. Samples and data from both participants with Lipedema and controls will be included, though we anticipate that control participation will be relatively less common, particularly in the beginning. Samples will be accompanied by extensive survey and clinical data collected from participants and clinicians.

Available Lipedema Samples (LF Biobank and others)

This following database is for informational and planning purposes only. Sample availability is dependent on individual biobank approval.

Scroll to access contact information and sample notes or click “View larger version” at the bottom right of the table.

The following are the existing sources we know about. If you would like to add a resource to the list, email awards@lipedema.org.