June is Lipedema Awareness Month

Lipedema Awareness Month 2024: Living Fully With Lipedema

What Is Lipedema?

Lipedema is a common yet lesser-known condition that primarily affects women and is often misdiagnosed as obesity and lymphedema. Learn more about the symptoms and challenges that Lipedema patients face via this short video.

 
 

How You Can Engage During Lipedema Awareness Month

The year’s Lipedema Awareness Month theme is Living Fully With Lipedema. This can mean different things, as everyone’s experience is unique. That’s why we want you to share what this means to you in your community. See how you can help using our toolkit below.

LIVING FULLY WITH LIPEDEMA

This year, the LF team aims to spotlight Lipedema, a chronic and often misunderstood condition, while fostering a community of support and empowerment. Our goal is to encourage patients and healthcare providers to embrace the challenges of Lipedema, find strength in their journey, and live life to the fullest.


2024 LIPEDEMA AWARENESS MONTH TOOLKIT

How To Use the Toolkit:

Help raise awareness about Lipedema! Share this content with your network. This selection of shareable images can be used on Facebook, Instagram, X and Pinterest. Click on any image below to download, save and share on social media.
Use the hashtags #LipedemaAwareness and #LivingFullyWithLipedema

WEAR PURPLE

Purple is the official color for Lipedema awareness. Show your support by wearing purple throughout the month. Use the hashtag #LipedemaAwarenessMonth to spread the word.

SHARE YOUR STORY

Help raise awareness and amplify patient voices by sharing your unique journey. Use the hashtags #LipedemaAwareness and #LivingFullyWithLipedema on social media. Whether it is about overcoming challenges or simply navigating daily life with Lipedema, your narrative is vital. By sharing your story, you contribute to greater awareness and validate of the Lipedema experience, helping to shape how Lipedema is perceived and treated.

KEY RESOURCES

NEW! Lipedema Treatment Page. Explore LF’s new Lipedema treatment page to find details on treatment options, care management and more.

Provider Directory.  Watch this video series, featuring LF’s Professional Education Manager Courtney Mascio, OT/L, CLT. In this series, Courtney provides an in-depth look at how healthcare professionals can utilize the LF Provider Directory to refer patients to rehabilitative therapy professionals specializing in Lipedema treatment.

Patient Self-Advocacy Guide. The Lipedema Foundation Patient Self-Advocacy Guide can help Lipedema patients in the United States navigate their healthcare journey.

Lipedema Foundation Registry. Sign up for the Lipedema Foundation Registry to help support scientific research.

Clinician’s Guide to Lipedema. This guide is designed to empower clinicians to feel more confident diagnosing Lipedema. Share this with your providers or medical teams by downloading and printing, or request copies be mailed to you.

Lipedema Brochure. Print out or request copies of the LF Brochure, which features key questions and shows what to look for in diagnosing lipedema.

What You Need To Know About Lipedema Infographic. Our downloadable infographic includes key information related to presentation, common symptoms, prevalence, diagnosis challenges, common misdiagnoses, and treatment. See the full graphic below:

 
 

The best way for our community to spread awareness for Lipedema is to grow our outreach. Help us spread awareness this June by signing up for our newsletter.