LF is Collecting the First Samples for its New Lipedema Biobank!
We are building a dedicated Lipedema biobank, and we need the community’s help to grow this critical research resource. Biobanks collect, store, and share biological samples and data to support scientific research, and they are a foundational tool to advance medical discoveries. These samples will contribute to ongoing efforts to discover the cause(s), progression, and potential treatments for Lipedema.
Every sample collected is a powerful step forward in advancing Lipedema research. If you are attending the FDRS Conference and/or are in the Atlanta area, this is a unique opportunity to contribute to a resource that will support groundbreaking studies for years to come!
Research Location
Crowne Plaza Atlanta Perimeter at Ravinia, Atlanta, GA
Live Research Event
Would you like to contribute to Lipedema research efforts? On March 20-22, 2025 during the FDRS 2025 Conference, the Lipedema Foundation will be offering the opportunity to contribute to ongoing efforts to discover the causes, progression, and potential treatments for Lipedema.
If you are able to come in person to the Crowne Plaza Atlanta Perimeter at Ravinia, we invite you to sign up and participate. Prior diagnosis is not required. A research exam, conducted by a clinician solely for the purpose of this study, will be part of the experience.
Participants will be asked to provide a blood and urine sample, to complete a health and lifestyle survey, and they will undergo an exam for research purposes, which will include body measurements, palpation/feeling of the fat in several body areas, discussion of symptoms, and several other standard exam procedures. Please note that the exam is for research purposes only and cannot be used for medical diagnosis and/or clinical treatment. Results cannot be released to the participant at the conclusion of the exam.
For the best experience during your blood and urine sample collection, we recommend staying well-hydrated by drinking plenty of water before your appointment. Being hydrated can help make the process smoother and more comfortable. However, please follow any personal hydration routines that work best for you.
Participants will need to disrobe prior to participating in the study. Changing areas and medical gowns will be available. Exam photographs will be taken during the exam, so participants may wish to wear conservative, opaque bras and panties if they so choose. To expedite the process, please come to your assigned time slot without compression garments on if possible.
Having undergone liposuction in the past does not exclude you from participating in these studies.
Please bring a list of all current medications and supplements, and a list of any previous weight loss, diabetes, or hormone medications.
Sign Up!
Females with Lipedema and those without Lipedema are invited to take part in the live research!
If you would like to participate, sign up below.
If you’re arriving early for the FDRS Conference or local to the Atlanta area, we encourage you to sign up for a Thursday or Friday research slot. Saturday spots are limited and reserved for those who cannot participate earlier. This also ensures you can attend the full Saturday sessions without interruption.
Please arrive for your assigned time 5 minutes early and without compression garments on (if possible).
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We encourage everyone to sign up in advance to secure a time slot here.
If you’re arriving early for the FDRS Conference or local to the Atlanta area, we encourage you to sign up for a Thursday or Friday research slot. Saturday spots are limited and reserved for those who cannot participate earlier. This also ensures you can attend the full Saturday sessions without interruption.
If you’re unable to sign up ahead of time, you may stop by the event to check for last-minute availability or cancellations, but we cannot guarantee a spot. -
Participants will:
Provide a blood and urine sample
Complete a health and lifestyle survey
Undergo a research exam, including body measurements, palpation (gentle examination of fat tissue in certain areas), a discussion of symptoms, and have photographs taken (for research purposes only)
*The research exam is conducted by a clinician for study purposes only and cannot be used for medical diagnosis or treatment.
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We expect the full experience to take approximately 60 - 90 minutes.
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Yes! Participation in the LF Registry or any previous Live Research events have no impact on participation in Live Research 2025.
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As there will be photos taken for the exam, please wear conservative, opaque bras and panties, if it would make you more comfortable.
A changing area and medical gowns will be available.
If possible, arrive without compression garments to expedite the process.
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Drink plenty of water before your appointment for a smoother blood and urine collection.
Arrive 5 minutes early to check in.
Bring a list of all current medications and supplements
Bring a list of past weight loss, diabetes, or hormone medications
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A list of all current medications and supplements
A list of past weight loss, diabetes, or hormone medications
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No! Those with Lipedema but no formal diagnosis are welcome and participants with and without Lipedema are welcome to take part in this study.
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Yes! A history of liposuction does not exclude you from participating.
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No. The research exam is for study purposes only and cannot be used for medical diagnosis or treatment. Results cannot be provided to participants.
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For any questions, feel free to reach out to biobank@lipedema.org, or visit our booth at the FDRS 2025 Conference.