+ When I execute a search I get more than I expected.

• One unique aspect of Legato, is that it has behind-the-scenes access to almost all the papers it cites. By default, Legato searches the bibliographic information, abstracts, and full text of all the collected papers.
• If you are getting too many results, use the widget next to the search bar to limit your query. For example, select "Title" or "in all fields" if you wish to search only for text that appears in the abstract or bibliographic fields. Use 'everywhere' to match to results found in the articles themselves.
• Check out the help icon near the search bar. Legato offers several things you can add to your search terms to finesse your query.

+ How are articles added to the site? I have an article you should add.

• The Lipedema Foundation staff regularly monitors academic journals and databases for new publications. This is a largely manual process. If you are aware of a paper we have missed, or know of one that will soon be published, please feel free to suggest it by emailing info@lipedema.org. Please include a pdf copy for review, if available.

• In general, to be included, articles must focus on lipedema, or provide text that suggests the relevance of the article to lipedema. In some cases, highly relevant reviews and seminal studies from closely related fields of study may be included, but the Lipedema Foundation makes no effort to provide a comprehensive catalog of conditions other than Lipedema.

Other criteria.

• Should be published in a credible academic journal or related forum. We typically do not store articles found in newspapers, video interviews, wikis, etc.
• We prefer that articles have undergone formal peer-review, though that is not always the case for all published lipedema research.
• Articles that have not been peer-reviewed, or are published in non-indexed journals are considered for inclusion on a case-by-case basis.

+ Are any of these papers free to the public?

• Yes, but not all. Some publishers charge money for access to articles. We have tried to provide links to both articles that are located behind paywalls and freely available “open access” articles. A checkbox in the nav bar is available to restrict results to open access articles.

+ How do I import these articles to a reference manager?

• Usually the best way is to use your reference manager's import functions to individually import a reference by an identifier such as its DOI, PMID, ISBN, etc. These identifiers can be found in each article listing.

+ How can I be notified as new articles are added?

• There are two current methods:
• The main library page and any search result page generates a URL that can be used in RSS or ATOM type feed readers. A link to this URL is provided in the lower right corner of the relevant pages.
• Newly published articles are also shared on Twitter via a dedicated account (@LipedemaBot)

+ Want to share an article or your thoughts on a paper?

• Please feel free to share these articles and opinions in your social media. We would love to see how the system is used, so tag us whenever appropriate. Every article has a permanent link that directs back to its record on our site. You can find this link on the article details where it says, “link to this record”
• If you would like to share thoughts in a more permanent venue, consider adding your thoughts to service like ResearchGate, F1000, or Pubpeer using the article’s digital object identifier (DOI) or Pubmed Identifier (PMID) found on the article detail. Some of these offer browser extensions that can identify when an article you’re reviewing online, including in the Legato library, has received comments.

+ Can someone share a copy of an article found here?

• If the article is available for sharing, we have provided a link to the free copy whenever known. In most cases, it is a violation of the publisher’s rights for us to share articles that would otherwise require payment to access.
• If the article is behind a paywall, your best opportunity to acquire a copy may be to write to the article's author directly.
• In some cases, Academic search engines or preprint services can be useful in finding versions of articles that sit outside of publisher paywalls. Be aware of copyright rules as you explore these options.
• There are exceptions to copyright rules that allow sharing as fair use of documents. This can include sharing between people who are actively collaborating on a project. If you are working with the Lipedema Foundation on a project that might require access to an article please discuss your options with your LF contact.

+ What happened to the older list of papers and books?

• In almost all cases, any item that discusses Lipedema is now available through Legato. Some items on related topics that did not explicitly address Lipdema were removed. If you are looking for one of those items, the original links are
• Lipedema Research Books and Chapters (Excel file download)
• Lipedema Papers (Excel file download)

+ Suggestions and Questions

• Have an idea? Want to share a paper we are missing? The Lipedema Foundation can be reached at info@lipedema.org and would love to hear your thoughts.