The Lipedema Foundation attended FDRS 2022
The Lipedema Foundation is a private, non-fundraising foundation established in 2015 by Felicitie Daftuar with a mission to fund research that defines, diagnoses and develops treatments for Lipedema. The Foundation is the world’s largest funder of Lipedema research, with more than $11 million awarded in the US and internationally to date. Meet the team!
COVID Patient Engagement Survey
As we move into a post-pandemic environment, we’d like to learn how members of our community have been doing over the past couple of years. Please take a few minutes to complete this survey, which should take about 6 minutes.
Thank you for your participation!
Reporting on Research - Don’t Miss our Featured Speakers!
Learn about the latest findings in Lipedema research. We are presenting at two sessions:
Saturday - 8:30-8:45 am: A Growing Field - Recent Advances and Future Directions in Lipedema Research
Download the presentation
Sunday - 11:05-11:20 am: Learning By Listening - Patient Voices in Research
Download the presentation
Registry First Look: Please email us at info@lipedema.org if you would like a preliminary review copy of the draft Lipedema Foundation Registry First Look report, and to share feedback on the report
We are unveiling a First Look of the Lipedema Foundation Registry data at the conference. Stop by our booth to take a peak.
We invite you to review the findings and provide feedback!
Check out our resources below and encourage friends and family to participate in the Registry. All voices count!
LF Registry
Clinical Trial Finder
Legato Library
Follow us on social media and sign up for our newsletter!
Use #lipedemachat on social media posts!
Brochure provides information for family, care givers and healthcare providers
The Lipedema Foundation’s What is Lipedema? brochure answers key questions about the condition and what to look for in terms of diagnosis. The brochure is available in English, Spanish and German. All three versions can be downloaded here. You can also order free copies that take two to three weeks to be delivered. To order, please fill out this form and include an address and quantity.