The Lipedema Foundation is attending FDRS 2023
Please stop by our booth and check out our talks
The Lipedema Foundation is a private, non-fundraising foundation established in 2015 with a mission to fund research that defines, diagnoses and develops treatments for Lipedema. The Foundation is the world’s largest funder of Lipedema research, with more than $11 million awarded in the US and internationally to date. Meet the team!
Reporting on research - don’t miss our featured speakers!
We are presenting at three sessions:
Saturday - 8:30-8:50 am: Lipedema Research Roundup
Download the presentation
Saturday - 9:45-10:00 am: Looking to the Future: a Roadmap for Lipedema Research link
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Saturday - 11:20-11:35 am: Advancing a Lipedema Patients' Bill of Rights
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Please share feedback vis email at info@lipedema.org, or come by our booth!
First Look Report: Learn how Lipedema impacts the lives of patients
The Lipedema Foundation has published the LF Registry First Look Report. The report features the findings of the LF Registry survey, highlighting noteworthy insights from patient data. Topics include diagnosis, symptoms, staging, and treatments. An Executive Summary is also available.
LF Registry
Clinical Trial Finder
Legato Library
Brochure provides information for family, care givers and healthcare providers
The Lipedema Foundation’s What is Lipedema? brochure answers key questions about the condition and what to look for in terms of diagnosis. The brochure is available in English, Spanish and German. All three versions can be downloaded here. You can also order free copies that take two to three weeks to be delivered. To order, please fill out this form and include an address and quantity.