The Lipedema Foundation is attending FDRS 2024
Please stop by our booth and check out our talks
The Lipedema Foundation is a private, non-fundraising foundation established in 2015 with a mission to fund research that aims to define, diagnose and develop treatments for Lipedema. The Foundation is the world’s largest funder of Lipedema research, with more than $12.5 million awarded in the US and internationally to date. Meet the team!
Reporting on research - don’t miss our featured speakers!
We are presenting at three sessions:
Friday, April 19, 2024 - 6:30-6:55 pm
The Lipedema Research Roadmap: Recommendations and Resources for the Field
Speaker: Jonathan Kartt
Download the presentation
Lipedema Research: Current Status and Future Perspectives
Speaker: Ashok Srinivasan, PhD
Download the presentation
Saturday, April 20, 2024 - 9:55-10:10 am
Supporting Clinicians in the Lipedema Care Journey: LF Roll-out of Lipedema Clinician's Guide & Provider Directory
Speaker: Courtney Mascio
Download the presentation
Please share feedback via email at info@lipedema.org or sign up for our newsletter at lipedema.org/contact-us
Clinician’s Guide to Lipedema
Our Clinician’s Guide to Lipedema is designed to aid clinicians in diagnosis and patient care. In this guide, you will find highlights on common presentation, physical examination, patient history, ICD codes, common treatments, and referrals. We hope this guide will empower clinicians to feel more confident diagnosing Lipedema. The Lipedema Foundation believes that every person deserves a timely diagnosis, disease-specific care, and other forms of support.
Patient Self-Advocacy Guide
Our Patient Self-Advocacy Guide is intended to help Lipedema patients in the United States no matter where they are in their journey. The Lipedema Foundation believes that every person deserves a timely diagnosis, disease-specific care, and other forms of support. Though there is currently no universal cure for Lipedema, we hope this guide will help you navigate your healthcare journey.
LF Registry
Sign up for the LF Registry! Your participation in our Registry helps support scientific research to improve the life of Lipedema patients. Sign up here.
Clinical Trial Finder
Participate in research studies. If you want to learn about clinical research studies that are seeking Lipedema patients, check out our LEGWORK Clinical Trial Finder.
Legato Library
Looking for Lipedema research? Our digital Legato Library makes it easy to search for Lipedema research by keyword, topics, and more. Find research papers here.
First Look Report
Learn how Lipedema impacts the lives of patients. The LF Registry First Look Report features the findings of the LF Registry survey, highlighting noteworthy insights from patients data. An Executive Summary is also available.
Brochure provides information for family, care givers and healthcare providers
The Lipedema Foundation’s What is Lipedema? brochure answers key questions about the condition and what to look for in terms of diagnosis. The brochure is available in English, Spanish and German. All three versions can be downloaded here. You can also order free copies that take two to three weeks to be delivered. To order, please fill out this form and include an address and quantity.